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Giunto alla sua nona edizione, FRAGILE ROCK tornerà a portare la sua carica di musica e solidarietà sabato 30 agosto a partire dalle 20.00 a Mondolfo (Pesaro) al Campo Sportivo Enrico Fermi. A calcare il palco di FRAGILE ROCK 2014 saranno gli Après la Classe con un concerto-evento gratuito, preceduto dalla performance dei Nudi sotto la Pioggia.
L’evento, organizzato in collaborazione con As.It.O.I. Onlus, e con il patrocinio del Comune di Mondolfo – Assessorato alle Politiche Giovanili è dedicato alla ricerca sull’Osteogenesi Imperfetta.
Quest’anno, i fondi raccolti consentiranno a un pool di ortopedici, fisioterapisti e specialisti italiani di partecipare ad un importante scambio internazionale e condividere conoscenze con i colleghi provenienti da tutto il mondo durante la Conferenza Scientifica Internazionale in programma il prossimo ottobre in Delaware (USA), patrocinata dall’Osteogenesis Imperfecta Foundation (OIF), l’associazione americana dedicata alla ricerca scientifica e alla divulgazione di conoscenze su questa patologia.
Nelle scorse edizioni, FRAGILE ROCK ha contribuito a finanziare, tra gli altri, un’importante ricerca sulle rarissime forme recessive di Osteogenesi Imperfetta, le uniche che per ora sembrano rispondere in modo positivo a terapie geniche che rappresentano un primo passo verso una terapia risolutiva e uno studio, tuttora in corso, finalizzato a creare gli strumenti per assistere il paziente dal punto di vista degli aspetti psicologici coinvolti nella sua vita, per sostenere le persone affette da O.I., spingendosi al di là delle difficoltà puramente fisiche.
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